Inquiry and computer program Onco-Online: 25 years of clinical registry for breast cancer at the University Medical Centre Maribor
Background: High-quality routine care data collected in the clinical registry play an important role in improving management of cancer patients. Clinical cancer registries record all important data in the course of cancer diagnosis, treatment, follow-up and survival. Analyses of such a comprehensive data pool make it possible to improve the quality of patients care and compare it with other health care providers.
Methods: The first inquiry at the Department of Gynaecologic and Breast Oncology of the General Hospital Maribor for following breast cancer patients has been introduced in 1994. On the basis of our experience and new approaches in breast cancer treatment, the context of inquiry has been changed and extended to achieve the form which we use now and which served as a model for developing an adequate computer program named Onco-Online in 2014.
Results: In the 25-year period, we collected data from about 3600 breast cancer patients. The computer program Onco-Online allows quick and reliable collection, processing and analysis of 167 different data of breast cancer patients from general information, medical history, diagnostics, treatment and follow-up.
Conclusions: The clinical registry for breast cancer Onco-Online provides data that assist us in improving diagnostics and treatment of breast cancer patients, organisation in daily practice and comparison of our results of treatment with the national and international standards. A limitation is potentially incomplete or incorrect input of data into the inquiry, which depends on different health care providers involved in the treatment of breast cancer patients.